Great Strides My Way 2021 - 65km
Laura Luck
Fundraising as part of team:
Team Xanthe Pants
My Story
CF is a condition that affects the gene controlling the movement of salt and water in and out of cells, resulting in a build up of sticky mucus in the lungs, digestive system and other organs. The symptoms are wide ranging and challenging, as is the regimen for those with the condition, who often have to take many different types of medication per day and do twice daily physiotherapy. Whilst CF is a life-limiting condition and there is currently no cure, there is extraordinary progress being made into treating the condition with the introduction of precision medicines such as Orkambi and, most recently, Kaftrio.
As you all know, our little Xanthe was diagnosed with Cystic Fibrosis shortly after her birth in 2018. She brings us huge amounts of joy and laughter and amazes us with the way she tackles this illness- taking her numerous daily medicines, doing her physio, inhaler, cough swabs, blood tests, hospital visits, all with very little fuss. She has been lucky enough to start on Orkambi recently and, when she is old enough, will start on Kaftrio. Without the CF Trust fighting for these medicines, we would not necessarily be in this position now. They are the UK's only national charity dealing with all aspects of Cystic Fibrosis, funding ground breaking research and aiming to ensure appropriate clinical care and support.
COVID-19 has hit the CF community hard and has seen a huge demand for their services, which comes at a time when they are dealing with a substantial drop in income due to the cancellation of the fundraising events they rely on. This has meant making really tough choices about which projects they can support, including funding research.
With a group of the most gorgeous girls, i will be walking 65km on 12th June to raise money for CF Trust. The money we raise will help to continue their vital work to ensure a future where people with CF can live a life unlimited. She may be naughty, but we want to keep Xanthe for as long as possible! Any donation, however small, is so greatly appreciated.
With many thanks, Team Xanthe Pants xx
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Target
£1,000
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Raised so far
£5,925
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Number of donors
93
My Story
CF is a condition that affects the gene controlling the movement of salt and water in and out of cells, resulting in a build up of sticky mucus in the lungs, digestive system and other organs. The symptoms are wide ranging and challenging, as is the regimen for those with the condition, who often have to take many different types of medication per day and do twice daily physiotherapy. Whilst CF is a life-limiting condition and there is currently no cure, there is extraordinary progress being made into treating the condition with the introduction of precision medicines such as Orkambi and, most recently, Kaftrio.
As you all know, our little Xanthe was diagnosed with Cystic Fibrosis shortly after her birth in 2018. She brings us huge amounts of joy and laughter and amazes us with the way she tackles this illness- taking her numerous daily medicines, doing her physio, inhaler, cough swabs, blood tests, hospital visits, all with very little fuss. She has been lucky enough to start on Orkambi recently and, when she is old enough, will start on Kaftrio. Without the CF Trust fighting for these medicines, we would not necessarily be in this position now. They are the UK's only national charity dealing with all aspects of Cystic Fibrosis, funding ground breaking research and aiming to ensure appropriate clinical care and support.
COVID-19 has hit the CF community hard and has seen a huge demand for their services, which comes at a time when they are dealing with a substantial drop in income due to the cancellation of the fundraising events they rely on. This has meant making really tough choices about which projects they can support, including funding research.
With a group of the most gorgeous girls, i will be walking 65km on 12th June to raise money for CF Trust. The money we raise will help to continue their vital work to ensure a future where people with CF can live a life unlimited. She may be naughty, but we want to keep Xanthe for as long as possible! Any donation, however small, is so greatly appreciated.
With many thanks, Team Xanthe Pants xx
