My Story

Arlo’s Mama 💛

Easily the role in my life that I’m most proud of.

And now I’m hoping to do something to make him proud, and to honour his resilience and bravery.

Since Arlo's diagnosis, the universe has been kind enough to send some incredible CF mamas my way. Most of these friendships have formed online (as our children with CF cannot meet due to cross infection risks) and yet they have offered me a ton of support, guidance, reassurance, and a sense of comradery that has helped so much during some of our best and worst moments.

So this year, in honour of Wear Yellow Day, for 1 month until 17 June, I will be uniting with nearly 70 other CF Mama's to do a virtual group fundraiser to raise money for our warrior children.

The premise of this fundraiser is to highlight the burden of treatment for our little ones. From the very point of diagnosis, babies with CF have to do at least 20 minutes of physio a day (as well as taking numerous oral medications). Now for Arlo and many others it is more than that, but that is the bare minimum.

So this amazing force of CF mamas have committed to do a symbolic 20 minutes of exercise a day to support the Cystic Fibrosis Trust and all our children who have cystic fibrosis.

Please donate anything you can, even the cost of a protein bar to give me a virtual boost! 😜 It would mean such a lot!

And please follow my Instagram account, @amummiesguidetocysticfibrosis, to learn more about CF and what it means for my son Arlo.